The simple enjoyment of eating a meal or drinking can be disrupted with choking or coughing for some. Most of us never think about how we eat or drink until we experience dysphagia, or trouble swallowing.
Cancers in the mouth, throat or esophagus can make it difficult to swallow and can be the cause of dysphagia. Through treatment the cancer can be taken care of, but long term side affects from the radiation of the cancer can persist. "Almost all of the patients I see aren't aware that radiation can have long term effects that don't set in immediately after treatment," explains Isabel Hotop, Speech-Language Pathologist (SLP) at Memorial Hospital's Therapy & Sports Rehab Center. "It may be years after radiation, before a patient first notices changes in their swallow function due to the onset of radiation fibrosis, or thickening or scarring of the tissue." There are ways to prevent the effects of radiation fibrosis and a SLP can help when a swallowing issue develops or worsens.
Here are answers to some of the most common questions from patients with dysphagia.
What is dysphagia and why do I have it?
Dysphagia is the medical term for “having trouble swallowing.” In cancer patients, it can be caused by the tumor itself (usually in head and neck cancers) — which blocks or narrows the food passage — or as a side effect of treatment.
A tumor in the head or neck can interfere with the ability of the lips, tongue, or throat muscles to move food around the mouth so that it can be chewed and passed to the esophagus. In other cases, the tumor may block the throat so that food and/or liquid cannot pass through it.
Radiation therapy can also cause swallowing problems. The effects of radiation — including scarring and fibrosis — build over time, and can reduce the ability of the throat muscles to function properly, even long after treatment is finished. Radiation can also cause narrowing of the swallowing passage — a problem known as "stricture."
Chemotherapy doesn’t generally cause lasting dysphagia, but it can make the effects of radiation worse. And though chemotherapy can also affect a patient’s appetite and desire to eat, those side effects are often temporary. The side effects of radiation are usually permanent.
Surgery can cause swallowing problems by removing structures in the head, neck or esophagus that normally allow food and liquids to pass through the system.
How is dysphagia diagnosed?
If you report trouble swallowing, your doctor will order tests to watch the food and water pass through your mouth and throat as you eat and drink. These tests may use imaging (such as X-rays during a modified barium swallow study) or a flexible scope to look inside your throat.
The degree of your dysphagia will be rated on both the efficiency and the safety of your swallows.
Swallowing efficiency is how quickly and effortlessly you’re able to swallow. “Inefficient” swallowing results in food being left behind in the mouth or throat. It might take a long time for you to eat, or feel like something’s been “left over” or “stuck” in your throat after each bite.
Swallowing safety is the ability to eat and drink without anything entering the airway, also known as “aspiration.” Food and liquid that enter your airway can cause pneumonia. So, it’s important to undergo a swallowing examination that evaluates your ability to protect the airway.
How might dysphagia affect my ability to eat?
Certain types of food, such as solids or those with grainy textures, may be harder for you to swallow than others. This can limit your diet. Some patients find that drinking liquid supplements — such as shakes and smoothies — helps them maintain their weight when swallowing is difficult. In other cases, you may need a feeding tube to ensure you’re receiving adequate nutrition while you heal.
In situations where swallowing a pill becomes impossible, ask your doctor to prescribe a liquid version of the medication, if it’s available. Or, ask your pharmacist if your medications can be crushed.
Do you have any special dietary recommendations?
No, because not everyone with dysphagia can eat the same foods. It is crucial to receive proper guidance regarding the types of foods and liquids that are safe for you to swallow.
These recommendations should come from a speech-language pathologist with experience working with cancer patients. A knowledgeable dietitian can provide information on how to make sure your diet is meeting your nutritional needs.
When should I approach my doctor for help?
Ideally, you would meet with a speech-language pathologist who has experience working with cancer patients before starting treatment, so that you could receive the appropriate testing, counseling and information needed to prevent or lessen the severity of dysphagia.
Once you’re actually having problems swallowing, you can still seek help. However, in general, the earlier therapy starts, the better the outcome. Some aspects of the dysphagia may be irreversible.
How will my dysphagia be treated?
Dysphagia can be treated using a variety of methods, including exercises, postures (such as head turns or chin tucks), massage techniques and muscle manipulation. In some cases, a gastroenterologist may need to stretch or dilate a tight area of your throat or esophagus under sedation, to allow food to pass through more easily.
Are my cancer-related swallowing issues temporary or permanent?
They can be either. It depends on the type of tumor, the size of the tumor, the stage of your disease and the type of treatment you’re getting. All of these factors play a role in determining the severity of dysphagia and your ability to recover from it. That’s why it is critical to meet with an experienced speech-language pathologist before cancer treatment begins. This ensures you’ll get the guidance needed to preserve as much swallowing function as possible.
What’s the one thing I should know?
The enemy of swallowing is NOT swallowing, so strive to preserve as much function as possible. "Use it or lose it." Keep those muscles moving, whether the goal is to maintain normal function going into your cancer treatment or to restore function that has been lost during the process.
Source: Kate Hutcheson, Ph.D., is an associate professor in Head and Neck Surgery, and Chief of Speech Pathology and Audiology at MD Anderson. https://www.mdanderson.org/cancerwise/dysphagia-in-cancer-patients--what-to-know-causes-diagnosis-prevention-treatment.h00-159305412.html